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	<title>Rachel Coleman &#187; deaf</title>
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		<title>Being Thankful&#8230; for Leah</title>
		<link>http://www.rachelcoleman.com/2008/12/08/being-thankful-for-leah/</link>
		<comments>http://www.rachelcoleman.com/2008/12/08/being-thankful-for-leah/#comments</comments>
		<pubDate>Mon, 08 Dec 2008 16:48:55 +0000</pubDate>
		<dc:creator>Rachel Coleman</dc:creator>
				<category><![CDATA[Crazy Little Thing Called Life]]></category>
		<category><![CDATA[Aaron Coleman]]></category>
		<category><![CDATA[baby]]></category>
		<category><![CDATA[Birthday]]></category>
		<category><![CDATA[deaf]]></category>
		<category><![CDATA[journals]]></category>
		<category><![CDATA[Leah Coleman]]></category>
		<category><![CDATA[rachel coleman]]></category>
		<category><![CDATA[sign language]]></category>
		<category><![CDATA[Signing Time]]></category>

		<guid isPermaLink="false">http://www.signingtime.com/rachel/?p=1326</guid>
		<description><![CDATA[Being Thankful for Leah Thanksgiving is over&#8230; and Leah&#8217;s birthday is today. She&#8217;s 12! (I KNOW, just go back and watch My First Signs and she will continue to live on as a 4 year-old and we can all just pretend that 12 isn&#8217;t happening!!) The night before Thanksgiving, I was thinking about the things [...]]]></description>
			<content:encoded><![CDATA[<p><strong>Being Thankful for Leah</strong></p>
<p>Thanksgiving is over&#8230;<br />
and Leah&#8217;s birthday is today.  She&#8217;s 12! (I KNOW, just go back and watch <a href="http://www.signingtime.com/volume-1-my-first-signs-dvd">My First Signs</a> and she will continue to live on as a 4 year-old and we can all just pretend that <strong>12</strong> isn&#8217;t happening!!)</p>
<p>The night before Thanksgiving, I was thinking about the things I am thankful for and then I thought that I could probably surprise myself by actually diving into my journals and reading how it really was.  I have 10 journals, so I opened one up to see what year and what thoughts it held&#8230;  The first one I opened was from 6 years ago.  The entry written about the Christmas after we shot Signing Time 2 and 3.</p>
<p><strong>~~~~~~~~~~~~~~~~~~~~~~~~</strong><br />
<strong>December 29, 2002 &#8211; Salt Lake City, UT</strong></p>
<p>Christmas was hard.  We had nothing and could give little, even to our own kids.  Aaron and I didn&#8217;t give each other gifts.  Two days before Christmas my dad gave us $200.  The next day my sister Julie gave us $200.  We were then able to get Leah a bike and a Gameboy.  She also got all of her Signing Time wardrobe clothes and the &#8220;Leah Doll&#8221; &#8211; it was pretty humbling.<br />
<strong>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</strong></p>
<p>After I read that I called Aaron in.  I read it to him and we both sat there stunned.  We had to think, really hard to even remember that Christmas.  The following morning, Thanksgiving Day, I pulled my dad and my sister Julie aside and thanked them for giving us Christmas 6 years ago.  Neither one of them vividly remembered helping us out.  Just as I didn&#8217;t vividly remember the Christmas we really needed help.  If it hadn&#8217;t been in my journal, would their generosity and our need have been entirely forgotten?</p>
<p>Then I couldn&#8217;t stop.  Each night I have poured over my journals.  It&#8217;s been painful.  It&#8217;s been funny.  It&#8217;s been an interesting journey, to say the least.  My journals are stuffed with concert tickets, notes, postcards, scribbles from Leah, photos, and songs I have written.<br />
<a href="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/journals.jpg"><img src="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/journals-150x150.jpg" alt="" title="journals" width="150" height="150" class="alignleft size-thumbnail wp-image-1327" /></a><a href="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/photo.jpg"><img src="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/photo-150x150.jpg" alt="" title="tickets" width="150" height="150" class="alignleft size-thumbnail wp-image-1328" /></a><a href="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/photo_2.jpg"><img src="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/photo_2-150x150.jpg" alt="" title="Leah&#039;s drawing" width="150" height="150" class="alignnone size-thumbnail wp-image-1330" /></a><br />
I dug deeper in time, reading the details of Leah&#8217;s birth and then found this:  </p>
<p><strong>~~~~~~~~~~~~~~~~~~~~~~~~~~~</strong><br />
<strong>December 10, 1996 &#8211; Salt Lake City, UT</strong></p>
<p>&#8230; Aaron said, &#8220;It&#8217;s a GIRL!!!&#8221;<br />
I started crying, &#8220;My baby, my baby girl!&#8221;<br />
Aaron kissed me and said, &#8220;It&#8217;s Leah.&#8221;<br />
Leah Jane Coleman.  Leah who was called Anna before her birth.  Leah who&#8217;d kick my ribs, (and sometimes my heart, it seemed) Leah who pushed against my guitar during all of those shows.  Leah who gave me the feeling while singing &#8220;In Silence.&#8221;</p>
<p>Little Leah Jane whose daddy would run his fingers over my belly and say &#8220;Here&#8217;s your spider, here comes your spider!&#8221;  Leah whose heels and knees I could slide around, whose little leg would press out hard as I massaged it.  Leah with hiccups- Leah at 1:00AM and 10:30AM playtime.  </p>
<p>Leah, who I threw up every day for.  Leah who I prayed about and worried about.  Leah, who made me what I&#8217;ve wanted to be most for years &#8211; a mom.  My little girl&#8217;s mommy.</p>
<p>Leah with me while I hiked in Boulder, Utah.  Leah in Bryce Canyon.  Leah hiking the Zion&#8217;s Narrows.  She&#8217;s my little girl.  My sweet little girl now and for always.  I love my daughter more than she may ever know.  </p>
<p>It&#8217;s 3:20AM and I&#8217;m crying my eyes out.  You&#8217;re here asleep next to me and your dad&#8217;s on the other side of you and that&#8217;s where we will always be, right beside you.</p>
<p>I love you so much.  I love you more than you may ever know, maybe when you have a girl of your own.  Goodnight my sweet girl, pleasant dreams.  I&#8217;m so glad you are here with us.  I love you, I love you &#8211; I LOVE YOU!&#8221;<br />
<a href="http://www.signingtime.com/rachel/wp-content/uploads/2008/12/ray-leah-in-hospital.jpg"><img src="http://www.signingtime.com/rachel/wp-content/uploads/2008/12/ray-leah-in-hospital-150x150.jpg" alt="" title="Newborn Leah" width="150" height="150" class="alignnone size-thumbnail wp-image-1434" /></a><br />
<strong>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</strong></p>
<p>I went forward in my journal, looking a year after Leah&#8217;s birth to find little bits and pieces.  Confused entries about Leah&#8217;s hearing.  Just a line here and there.  Things like:</p>
<p>&#8220;We don&#8217;t know if she can hear us.&#8221;<br />
&#8220;She has fluid in her ears, but her pediatrician thinks it&#8217;s more than that&#8230;&#8221;<br />
&#8220;We can&#8217;t get in for the ABR test for 6 more weeks!&#8221;<br />
&#8220;Still no answer on Janey&#8217;s ears.&#8221;</p>
<p>No answers in my journal for months and then I found this:<br />
<a href="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/photo_3.jpg"><img src="http://www.signingtime.com/rachel/wp-content/uploads/2008/11/photo_3-225x300.jpg" alt="" title="journal entry" width="225" height="300" class="alignnone size-medium wp-image-1334" /></a></p>
<p><strong>~~~~~~~~~~~~~~~~~~~~</strong><br />
<strong>March 31, 1998 Tuesday</strong><br />
Salt Lake City, UT</p>
<p>I don&#8217;t know if I&#8217;ve ever felt so alone in my whole life.  I feel like there is no one I can talk to because no one would understand why I&#8217;m crying.  Actually I think they would misunderstand.  I don&#8217;t want anyone to feel sorry for me or for Janey.  I don&#8217;t want to call our families and tell them what &#8220;PK&#8221; the audiologist told us today.  Half of my tears are simply tears of relief.  The wondering and questions are done.  A tearful release of 2 1/2 months- fears, hopes, anticipation and prayers.  </p>
<p>I know it&#8217;s not helpful but I can only blame myself, and it&#8217;s eating me up inside.  I think that in his heart Aaron blames me too.  In only these past few months people have asked if Jane&#8217;s hearing loss is because of my band.  And playing and practicing while I was pregnant.  People ask.  Or they say &#8220;boy that must be devastating with you being a musician and music meaning so much.&#8221;  Do they really think I give a S#*! about my music in comparison to my DAUGHTER?</p>
<p>I&#8217;d never sing or play another note if it mattered.  Music is nothing to me. Leah Jane is my world.  She is wonderful.  She is beautiful.  I feel like the biggest obstacle in her way is me.  I don&#8217;t know sign language.  I came so close to learning it, so many times.  But I didn&#8217;t.  I feel bewildered.  But I feel thankful that we caught it as early as we did&#8230;.</p>
<p>&#8230;.We may never know what caused it, or if she as born with it.  &#8220;Deaf&#8221; is such an uncomfortable word for me to use.  In a way I am glad that I didn&#8217;t know when she was born.  Maybe I would&#8217;ve treated her differently.  Maybe I&#8217;d be totally over protective.  Everyone would&#8217;ve treated her a little different.  But now I have had 16 months of Janey.  And treating her like a regular kid (except that she is more awesome than most kids)&#8230;</p>
<p>&#8230;I know of 3 people who are deaf.  I&#8217;ve had conversations with only one of them ever.  I hardly know what the term means.  I remember the deaf kids in Jr. High and High school.  I sure could not tell you any of their names.  They all stayed together with their interpreter and I never gave them a second thought.</p>
<p>Severe &#8211; Moderate &#8211; Mild mean so little all your life.  But today, I was told my daughter has a severe hearing loss. And I still barely grasp the concept.  But the word SEVERE is clanging around in my brain.  SEVERE?  What does that mean?  And what does deaf mean?  Is there a scale to measure it on?  If hearing aids help you are you still deaf?</p>
<p>She can sign a few words now.  MOMMY, SLEEP, EAT, SHOES, THANK YOU, BIRD.  When I teach a sign she always &#8220;rolls it and rolls it and sticks it with a B&#8221;</p>
<p>She has the most beautiful lips and puckers for kisses.  She also puckers when I tell her &#8220;NO&#8221; because it looks like kisses.  How can I keep a straight face when she does that?<br />
When she gets frustrated she hits her head with her hands, or on the floor.</p>
<p>When she&#8217;s nursing, she looks up at me then squeezes both eyes shut tight and then pops them open.  She nurses, and the corners of her mouth turn up in a smile.  Maybe she&#8217;s never heard me say the <u>WORDS</u> I love you.  But you know what?  It doesn&#8217;t matter.  It doesn&#8217;t matter at all.  She probably knows it more than most kids who hear it every day.<br />
<strong>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</strong></p>
<p>A few weeks ago Leah and I were talking.  She asked me how I felt when I found out she was deaf.  I told her, &#8220;I was distraught.  I cried.  I didn&#8217;t know what I was supposed to do.  I was scared.&#8221;  </p>
<p>Leah smiled at me and said, &#8220;That&#8217;s so funny mom.  You thought it was terrible and now you know it&#8217;s not.&#8221;</p>
<p>She&#8217;s right.</p>
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