It’s Buddy Walk Season!

UTAH, NEW YORK, WISCONSIN, OHIO, & VIRGINIA I’m coming your way! (scroll down to register for these upcoming events)

Here it comes! I am staring down the barrel of September and October and you know what THAT means… It’s Down Syndrome Buddy Walk Season!!! Yes, it’s time to celebrate and fundraise and meet and sing and sign with the many families who love someone with Down syndrome. Around here, my kids just say “good-bye” to their Mama every weekend. I wish there were more weekends in September and October so that I could actually accommodate all of the requests I receive each year. (Note to Buddy Walk Organizers, we are ALREADY getting requests for 2012)

At each event this year I have created a “Team Signing Time!” for our fans who may not necessarily know anyone who has Down syndrome, but who would still love to participate and see a Signing Time event in their area. If you are coming to a Buddy Walk for a Signing Time performance, PLEASE register for The Walk and participate, I guarantee it will be an experience you will never get over. One Buddy Walk organizer told me that their registrations went up 20% the year they had me perform, that’s good news for everyone! So yes, you are welcome to attend and participate, plus I’ll have tattoos and stickers for Team Signing Time and we’ll take a Team Photo together.

Here are the Buddy Walks and Awareness Walks were you can find me this year:
Sept 10, 2011
UDSF – Utah Down Syndrome Foundation Buddy Walk
West Riverfront Park
South Jordan, Utah
8:30am Buddy Walk Registration
10:30am Performance by Rachel Coleman
11:30am Buddy Walk
Click HERE to join for Team Signing Time! in Utah
*Be sure to say “Hi!” to Leah and Lucy at this event!

September 24, 2011
National Down Syndrome Society Buddy Walk

Great Hill in Central Park, NYC
Registration and activities begin at 11:00am
Walk begins at 12:20pm
Click HERE to join Team Signing Time! in New York City
*Look for Aaron, Rachel, Leah, Lucy AND Laura at this event!

Fox Cities Wisconsin Down Syndrome Awareness Walk and Pre-Walk Activities
September 30, 2011

PreWalk Event (I’m speaking and sharing my family’s story… bring kleenex)
Perry Hall, UW Fox Valley, Menasha
Time: Doors Open at 6:30pm
Presentation Begin at 7:00pm

October 1, 2011
2nd Annual Fox Cities Wisconsin Down Syndrome Awareness Walk
Down Syndrome Association of Wisconsin
Riverside Park, Neenah
Click HERE to join Team Signing Time! in Fox Cities Wisconsin

October 2, 2012
Greater Toledo Down Syndrome Association Buddy Walk

12 p.m. – 4 p.m.
Rocket Hall, University of Toledo
Click HERE to join Team Signing Time! Toledo
*Toledo’s Buddy Walk site is back up! REGISTER NOW!

October 15, 2011
Down Syndrome Association of Northern Virginia Buddy Walk
Bull Run Regional Park in Centreville, VA
8:00am – 2:00pm
Click HERE to join Team Signing Time! NoVA

A few things you may not know… We have been donating products to Buddy Walks since 2003. My very first Buddy Walk appearance and performance was for the Down Syndrome Association of Northern Virginia Buddy Walk in 2006. Two weeks later I performed for the Manasota Buds in Bradenton, Florida.

Last year Signing Time partnered with The National Down Syndrome Society. We donated over $9,000 worth of Signing Time DVDs and products to Down Syndrome Buddy Walks across the country in 2010 by offering a free Signing Time Gift Set to every Buddy Walk that was officially registered with NDSS. This year, we are doing it again! Every Buddy Walk that is registered with NDSS can get one free DVD gift set (just pay shipping). The set includes Leah’s Farm, The Zoo Train, and The Great Outdoors, as well as the accompanying music CD to use in their raffles, silent auctions, or to give to a family in need of communication. It’s one per Buddy Walk, and all they pay is shipping. Have your Buddy Walk organizer visit www.signingtimefoundation.org/buddywalk by October 31st.

DVD Gift Set for each Buddy Walk

So, while you are all taping fall leaves to your front windows and carving pumpkins… I’ll be taping orange and blue electric tape around my fingers because around here THAT is the first sign of fall.

2010 NYC Team Signing Time


2010 Massachusetts Team Signing Time

Babies, Buddy Walks and Blogs

It’s that time of year again… the time of year when my siblings and friends have a ton of babies all within weeks of each other! I know. Weird! It’s also the time of year called “fall” and that means I am galavanting around the country with colors on my fingers and singing and signing with some of our most devout Signing Time Fans… because it’s ALSO the time of year for Down syndrome awareness walks!

WAIT!!! — remember what happened last time everyone I knew was going into labor and I was performing at Buddy Walks?

I remember.
It was 2008.

It started with Baby Asher then came Baby Ryan and even Baby Carter came along too! (But he was born in Georgia… SO far away from me)

The grande finale was Rachel & Natalie’s Excellent Adventure in the midst of all of that I went to Oklahoma, Oregon, and Denver… and then… then Leah’s hat caught on fire.

Oops!

Well, that was 2008.
…And this is 2010

My sister Sarah had Baby Oslo

weeks later my sister-in-law Danielly had Baby Zoey.

A week later my sister-in-law Katie had Baby Brody. (They are in Las Vegas, so I don’t have a photo of Lucy holding him… YET.)

And for the GRAND FINALE… my sister Emilie, yes THE Emilie, had a baby girl on September 20th!!! (a little girl who is yet to be named, but big deal, they didn’t name Alex for three weeks and he turned out all right)

I’m happy to report that Baby Girl Brown attended her first Signing Time Owner’s Meeting yesterday. I held her while Emilie and I held the meeting with others via Skype. Being the boss is boss!

I was able to be at all of the births I was scheduled to be at… and likewise I was not at the births I was not expected to be at… that’s how birth should be.

In the meantime… here is my Down Syndrome Walk schedule 🙂 I already performed in Salt Lake City… and New York City… you were either there or you missed them. Either way you can see photos of the SLC event on my Facebook Fan Page and you can see NYC photos there as well. This weekend I head to Fox Cities, Wisconsin and the following week I will be in the Boston, Massachusetts area.

We have created Team Signing Time for each of the events this year so all of you Signing Time Families can hang out, get freebies and walk together.

Utah Down Syndrome Foundation Buddy Walk
When: Saturday, September 18 at 11:30 a.m.
Where: West Valley Cultural Celebration Center, located at 1355 West 3100 South just off Redwood Road
You weren’t here, but we were!

Rachel Hopkins and Leah

If you weren’t there, then you missed THIS magical moment:

Caterpillar Dreams - Lucy

The National Down Syndrome Society Buddy Walk in New York
Team Signing Time NEW YORK
When: Saturday, September 25, 2010 at 1:00 p.m.
Rachel will perform at The Great Hill, Central Park, New York City

Team Signing Time NYC

You also missed this magical moment…

Darth Vader's Angels

Wisconsin Down Syndrome Awareness Walk
Team Signing Time WISCONSIN
I will be giving a keynote address on Friday, October 1 at 6:30pm at Elks Lodge No. 337
(1103 W College Ave, Appleton, WI)
I will be performing at The Awareness Walk on Saturday, October 2, 2010 at 1:45pm at Riverside Park, Neenah, Wisconsin

The Massachusetts Down Syndrome Congress Buddy Walk
Team Signing Time MASSACHUSETTS
Where: Buddy Walk at in Wakefield, MA at Lake Quannapowitt
When: Sunday, October 10, 2010 at 12:00 pm

Strong Enough for Nina

Last December I received an email with the subject, “I was her legs today. You had a part of it.” Ellen was writing to me from the Ukraine where she was in the process of adopting a little girl. Her email shared how my “Strong Enough” post had arrived in her inbox with perfect timing, timing that changed her family and changed their world. I was so touched, I asked her to please join me here as my first Guest Blogger. Here is their story:

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
STRONG ENOUGH FOR NINA

After our youngest daughter was born with Down syndrome, we embarked in the most life altering journey of our lives. She had enriched our lives in meaningful and powerful ways. For this reason, I had spent almost two years looking at the faces of children on Reece’s Rainbow, an International Adoption Ministry for children with Down syndrome. I had fallen in love with many of them, praying that they would find forever families and wondering if any of them were meant to be ours. My husband Andy and I knew that adoption was in our future, but unlike me, he had not felt inclined to inquire about any of the children, so I waited. Occasionally, I would visit Reece’s Rainbow “Other Angels” page. These are the children with other special needs.

It was a late night in July, as I scrolled down the faces, I heard him say while he looked over my shoulder,

“Wait! Scroll back up a little”

I did.

“Right there” he said pointing to a beautiful smiling face, “That little girl looks just like a Stumbo.”

I stared intently at her face.

“Look at her eyes” he added, “She looks just like my sister.”

I got up to find our baby book. A small scrapbook I had made with our baby pictures before our oldest daughter was born. I returned to find him still studying the little face. I opened it up to the first picture and held it up next to the computer screen.

“Honey” I said, “She doesn’t look like your sister, she looks just like you.”

We stared at the photographs, blown away by the strong resemblance.

“You should ask what country she is from and if they have any more information on her.”

“Are you serious?” I asked excited.

“We have been talking about having another child, maybe our next child will come to us through adoption.”

“Does it say what her diagnosis is?” I asked

“Yes” he responded, “Cerebral Palsy”

Cerebral Palsy. The words were heavy, they fell on my heart and threatened to crush it. Cerebral Palsy? I could do Down syndrome, but Cerebral Palsy?

We decided to give ourselves some time to think and pray. We researched Cerebral Palsy and invited our close friends and family to help us sort through our thoughts and feelings. The fact that we wanted to adopt another child with special needs, did not mean that the time was now. I was scared about her disability and my ability to parent her. Could we do it? Could I do it?

As it is in many European countries, children with special needs are transferred from orphanages to institutions by the age of four. Once children arrive in these institutions, many die within the first year. We knew that time was of the essence, and if we were going to be serious about this, we needed to make a commitment to her soon.

It was during this time of “reflection,” that Rachel Coleman wrote her post, “Strong Enough to Be Her Mom.” It was a story about Lucy. Lucy, her beautiful daughter with Cerebral Palsy, her inspiration to be “strong enough.” Was she “strong enough to show her a word beyond sidewalks and ramps?” Would she be Lucy’s yes in a world of no’s?

Rachel didn’t know that the message she had shared in her story, was about to change the life of a little girl half way across the world. She didn’t know that she was asking me, “Ellen, will you be strong enough to be Nina’s mother? Will you show her a world beyond the walls of an orphanage? Will you be her yes?”

Tears started to trickle down my cheeks, they soon became a steady stream, and eventually the flood gates opened up and I was sobbing. I remembered what Andy had said earlier in the day, “She might have Cerebral Palsy but she still deserves a mommy and a daddy that will love her and believe in her potential.”

Talking about Rachel Coleman or Signing Time is common in our house. Our daughter walks around the house holding Rachel’s picture (sometimes she even needs to look at her while sitting at the dinner table) and constantly asks for a video or the music. We know all the songs, and almost all the signs. So when I told my husband I had just read Rachel’s last blog post and began to cry as soon as I said her name, he was sure I had had enough “singing time, and dancing time, and laughing time, and playing time.” But through tears I told him about Lucy and Rachel “I will be Nina’s yes, I will be strong enough for her” I said.

Four months later I held a sweet little girl with Cerebral Palsy in my arms. My daughter Nina.

For almost 4 years she had lived in one room. A room where she slept, ate, and played. Her life consisted of four walls. Even within the walls she had limitations due to her mobility. And while other children might have been taken outside to play once in a while, she stayed behind.

The first day that I was allowed to see her room my heart broke to a million pieces. It broke for the orphans, it broke for those children with special needs nearing their 4th birthday, and it especially broke for Nina.

I asked if I could take her outside to play, I could see other children on the orphanage grounds through the window. They said I couldn’t take her out because she couldn’t walk. I said I would carry her. They said it would be too hard, she couldn’t be carried like a “normal” child. I said I didn’t care. They said I didn’t understand. I said she was my daughter. They rolled their eyes, got her dressed, and put her in a wobbly, metal stroller.

After only a few minutes, I took Nina out of the stroller, it was impossible to maneuver on the uneven ground. I decided she could point and tell me where she wanted to go. As we walked around she would look at me and smile. The reality of her life continuing to sink in my heart. Her world was so limited not only because of being an orphan, but because of her CP. Her world limited to a room. Nobody was there to open her world. Nobody was there to be her “yes.”

I thought about Rachel and Lucy. When Rachel does not feel like running she still runs because she can and because Lucy needs her to be strong enough.

Nina had never had someone stand before a road, willing to explore, to walk, to be her legs. Nobody ever had, and in this place, nobody ever would. Would I be her “yes”? And when necessary, would I be her legs? Emotion welled up inside me, it needed to come out, to be released. So what did I do? I took off running. With Nina sitting awkwardly on my hip, we ran as fast as I could and for as long as I could. We ran, and we ran, and we ran.

Joy, there was pure joy in my daughter’s face! Because in that moment she had legs and in that moment she could run! It was pure bliss!

A worker shook her head at us. She wore a disapproving frown. But on that day disapproval was tossed away, and a child felt the cold wind on her face and ran! Ran with her mama!

That moment birthed determination in me. I will be her yes. I will be strong enough. And when necessary, I will also be her legs.

There are many children with special needs in Eastern Europe and other parts of the world. Reece’s Rainbow seeks to find families for these children. So just like Rachel challenged me, I will challenge you. Will you be a “yes” for one of these children?
Will you be strong enough?

Ellen and Nina

Ellen and Nina

You can visit Ellen’s Blog here: www.elliestumbo.blogspot.com