Being Thankful… for Leah

Being Thankful for Leah

Thanksgiving is over…
and Leah’s birthday is today. She’s 12! (I KNOW, just go back and watch My First Signs and she will continue to live on as a 4 year-old and we can all just pretend that 12 isn’t happening!!)

The night before Thanksgiving, I was thinking about the things I am thankful for and then I thought that I could probably surprise myself by actually diving into my journals and reading how it really was. I have 10 journals, so I opened one up to see what year and what thoughts it held… The first one I opened was from 6 years ago. The entry written about the Christmas after we shot Signing Time 2 and 3.

~~~~~~~~~~~~~~~~~~~~~~~~
December 29, 2002 – Salt Lake City, UT

Christmas was hard. We had nothing and could give little, even to our own kids. Aaron and I didn’t give each other gifts. Two days before Christmas my dad gave us $200. The next day my sister Julie gave us $200. We were then able to get Leah a bike and a Gameboy. She also got all of her Signing Time wardrobe clothes and the “Leah Doll” – it was pretty humbling.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

After I read that I called Aaron in. I read it to him and we both sat there stunned. We had to think, really hard to even remember that Christmas. The following morning, Thanksgiving Day, I pulled my dad and my sister Julie aside and thanked them for giving us Christmas 6 years ago. Neither one of them vividly remembered helping us out. Just as I didn’t vividly remember the Christmas we really needed help. If it hadn’t been in my journal, would their generosity and our need have been entirely forgotten?

Then I couldn’t stop. Each night I have poured over my journals. It’s been painful. It’s been funny. It’s been an interesting journey, to say the least. My journals are stuffed with concert tickets, notes, postcards, scribbles from Leah, photos, and songs I have written.

I dug deeper in time, reading the details of Leah’s birth and then found this:

~~~~~~~~~~~~~~~~~~~~~~~~~~~
December 10, 1996 – Salt Lake City, UT

… Aaron said, “It’s a GIRL!!!”
I started crying, “My baby, my baby girl!”
Aaron kissed me and said, “It’s Leah.”
Leah Jane Coleman. Leah who was called Anna before her birth. Leah who’d kick my ribs, (and sometimes my heart, it seemed) Leah who pushed against my guitar during all of those shows. Leah who gave me the feeling while singing “In Silence.”

Little Leah Jane whose daddy would run his fingers over my belly and say “Here’s your spider, here comes your spider!” Leah whose heels and knees I could slide around, whose little leg would press out hard as I massaged it. Leah with hiccups- Leah at 1:00AM and 10:30AM playtime.

Leah, who I threw up every day for. Leah who I prayed about and worried about. Leah, who made me what I’ve wanted to be most for years – a mom. My little girl’s mommy.

Leah with me while I hiked in Boulder, Utah. Leah in Bryce Canyon. Leah hiking the Zion’s Narrows. She’s my little girl. My sweet little girl now and for always. I love my daughter more than she may ever know.

It’s 3:20AM and I’m crying my eyes out. You’re here asleep next to me and your dad’s on the other side of you and that’s where we will always be, right beside you.

I love you so much. I love you more than you may ever know, maybe when you have a girl of your own. Goodnight my sweet girl, pleasant dreams. I’m so glad you are here with us. I love you, I love you – I LOVE YOU!”

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I went forward in my journal, looking a year after Leah’s birth to find little bits and pieces. Confused entries about Leah’s hearing. Just a line here and there. Things like:

“We don’t know if she can hear us.”
“She has fluid in her ears, but her pediatrician thinks it’s more than that…”
“We can’t get in for the ABR test for 6 more weeks!”
“Still no answer on Janey’s ears.”

No answers in my journal for months and then I found this:

~~~~~~~~~~~~~~~~~~~~
March 31, 1998 Tuesday
Salt Lake City, UT

I don’t know if I’ve ever felt so alone in my whole life. I feel like there is no one I can talk to because no one would understand why I’m crying. Actually I think they would misunderstand. I don’t want anyone to feel sorry for me or for Janey. I don’t want to call our families and tell them what “PK” the audiologist told us today. Half of my tears are simply tears of relief. The wondering and questions are done. A tearful release of 2 1/2 months- fears, hopes, anticipation and prayers.

I know it’s not helpful but I can only blame myself, and it’s eating me up inside. I think that in his heart Aaron blames me too. In only these past few months people have asked if Jane’s hearing loss is because of my band. And playing and practicing while I was pregnant. People ask. Or they say “boy that must be devastating with you being a musician and music meaning so much.” Do they really think I give a S#*! about my music in comparison to my DAUGHTER?

I’d never sing or play another note if it mattered. Music is nothing to me. Leah Jane is my world. She is wonderful. She is beautiful. I feel like the biggest obstacle in her way is me. I don’t know sign language. I came so close to learning it, so many times. But I didn’t. I feel bewildered. But I feel thankful that we caught it as early as we did….

….We may never know what caused it, or if she as born with it. “Deaf” is such an uncomfortable word for me to use. In a way I am glad that I didn’t know when she was born. Maybe I would’ve treated her differently. Maybe I’d be totally over protective. Everyone would’ve treated her a little different. But now I have had 16 months of Janey. And treating her like a regular kid (except that she is more awesome than most kids)…

…I know of 3 people who are deaf. I’ve had conversations with only one of them ever. I hardly know what the term means. I remember the deaf kids in Jr. High and High school. I sure could not tell you any of their names. They all stayed together with their interpreter and I never gave them a second thought.

Severe – Moderate – Mild mean so little all your life. But today, I was told my daughter has a severe hearing loss. And I still barely grasp the concept. But the word SEVERE is clanging around in my brain. SEVERE? What does that mean? And what does deaf mean? Is there a scale to measure it on? If hearing aids help you are you still deaf?

She can sign a few words now. MOMMY, SLEEP, EAT, SHOES, THANK YOU, BIRD. When I teach a sign she always “rolls it and rolls it and sticks it with a B”

She has the most beautiful lips and puckers for kisses. She also puckers when I tell her “NO” because it looks like kisses. How can I keep a straight face when she does that?
When she gets frustrated she hits her head with her hands, or on the floor.

When she’s nursing, she looks up at me then squeezes both eyes shut tight and then pops them open. She nurses, and the corners of her mouth turn up in a smile. Maybe she’s never heard me say the WORDS I love you. But you know what? It doesn’t matter. It doesn’t matter at all. She probably knows it more than most kids who hear it every day.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

A few weeks ago Leah and I were talking. She asked me how I felt when I found out she was deaf. I told her, “I was distraught. I cried. I didn’t know what I was supposed to do. I was scared.”

Leah smiled at me and said, “That’s so funny mom. You thought it was terrible and now you know it’s not.”

She’s right.